Disturbing: Mother Scammed in Attempt to Purchase Baby Formula for Daughter With Rare Disease (VIDEO)
A California mother whose 11-year-old daughter has a rare disease that impacts her ability to digest food says she was scammed while trying to purchase baby formula amid the nationwide shortage.
Keely Aguilar’s daughter, Nataliyah, has Bainbridge Roper Syndrome, which per the National Institutes of Health (NIH), is “characterized by developmental delay or intellectual disability, typically in the moderate to severe range, with speech and language delay and/or absent speech.” The NIH indicates that digestive complications may arise as well. . .
In a video posted on social media, Keely explained that due to Nataliyah’s inability to digest food properly, she can only ingest formula that has been “pre-broken down” in a feeding tube through to her intestines. Due to the nature of this process, Nataliyah can not intake formula bought from a grocery store and must source it from elsewhere. . .
As Keely and Nataliyah’s story gained attention through social media and local outlets, many reached out to the Aguilars, offering help with finding and purchasing formulas, ABC 7 noted. However, as Keely claimed, among those who reached out were scammers. “I have been scammed. People are preying on this situation,” she stated.
Keely had been reached out to by a person via Facebook claiming to have formula for sale for $250, ABC 7 reported. “I thought I was doing my due diligence in asking a lot of questions. I asked for pictures, I asked for expiration dates on the cans. She had all the right answers,” Aguilar explained. “And so I sent money, and then her profile on Facebook disappeared.” (Read more from “Disturbing: Mother Scammed in Attempt to Purchase Baby Formula for Daughter With Rare Disease” HERE)
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