Couple Welcomes Terminal 'Bucket List' Baby, Then Says Goodbye

The Pennsylvania couple that carried out a heartbreaking bucket list for an unborn baby with a terminal condition announced the birth of the boy today, and his death a few hours later.

“Today at 6:15 a.m., after meeting his entire family and being baptized into the Catholic faith, baby Shane died peacefully in his Mother’s arms,” Jenna and Dan Haley of Philadelphia wrote in a Facebook message. “We are so grateful for the time that we were blessed to hold and hug our son.”

Shane was diagnosed with anencephaly, a brain defect in which a baby is born without parts of its brain and skull and isn’t expected to survive. Almost all babies die shortly after birth, according to the Centers for Disease Control and Prevention.

The couple told ABC News in an earlier interview they learned of the condition in April and decided they wanted to make the most of Shane’s life by creating a bucket list they would tackle while Jenna Haley was pregnant.

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